Newcastle University

Introduction

My areas of academic interest are: (a) the notion of personhood, especially related to dementia, and the ethical implications that flow from a particular understanding of personhood; (b) palliative care and the consequent ethical issues that arise for people with dementia and their carers; and (c) the underpinning conceptual and ethical bases of legal concepts relevant to clinical practice in old age medicine and psychiatry. My strategy has two main prongs: to build up our understanding of the conceptual underpinning of clinical practice; and to investigate the nature of ethical dilemmas inherent to clinical practice in relation to ageing.

• Hughes JC. Thinking Through Dementia. Oxford: Oxford University Press, 2011.
• Hughes JC. Alzheimer's and other Dementias. Oxford: Oxford University Press, 2011.
• Hughes JC, Lloyd-Williams M, Sachs GA, ed. Supportive care for the person with dementia. Oxford, UK: Oxford University Press, 2010.
• Hughes JC, Louw SJ, Sabat SR, ed. Dementia: Mind, Meaning, and the Person. Oxford: Oxford University Press, 2006.
• Hughes JC, Baldwin C. Ethical Issues in Dementia Care: Making Difficult Decisions. London: Jessica Kingsley, 2006.
• Hughes JC, ed. Palliative Care in Severe Dementia. London: Quay Books, 2006.
• Küpper A-L, Hughes JC. The challenges of providing palliative care for older people with dementia. Current Oncology Reports 2011, 13(4), 295-301.
• Jordan A, Hughes J, Pakresi M, Hepburn S, O'Brien JT. The utility of PAINAD in assessing pain in a UK population with severe dementia. International Journal of Geriatric Psychiatry 2011, 26(2), 118-126.
• Hughes J. What do people with dementia and their carers really need?. Neurodegenerative Disease Management 2011, 1(1), 37-42.
• Hughes JC, Haimes E, Summerville L, Davies K, Collerton J, Kirkwood T. Consenting older adults: research as a virtuous relationship. In: Corrigan, O; McMillan, J Liddell, K; Richards, M; Weijer, C, ed. The Limits of Consent: A Socio-ethical Approach to Human Subject Research in Medicine. Oxford: Oxford University Press, 2009, pp.133-150.
• Hughes JC. [abstract] Capacity: What is it and so what?. International Psychogeriatrics 2003, 15(s2), 215.
• Baldwin C, Hughes J, Hope T, Jacoby R, Ziebland S. Ethics and dementia: mapping the literature by bibliometric analysis. International Journal of Geriatric Psychiatry 2003, 18(1), 41-54.
• Hughes JC, Hope T, Savulescu J, Ziebland S. Carers, ethics and dementia: a survey and review of the literature. International Journal of Geriatric Psychiatry 2002, 17(1), 35-40.
• Hughes JC, Louw SJ. Confidentiality and cognitive impairment: professional and philosophical ethics. Age and Ageing 2002, 31(2), 147-150.
• Hughes JC, Hope T, Reader S, Rice D. Dementia and ethics: the views of informal carers. Journal of the Royal Society of Medicine 2002, 95(5), 242-246.
• Hughes JC, Louw SJ. Electronic tagging of people with dementia who wander - Ethical considerations are possibly more important than practical benefits. British Medical Journal 2002, 325(7369), 847-848.
• Hughes JC. Ethics and the anti-dementia drugs. International Journal of Geriatric Psychiatry 2000, 15(6), 538-543.
• Hughes JC. Future scoping: ethical issues in aging and dementia. In: Illes, J., Sahakian, B.J, ed. The Oxford Handbook of Neuroethics. Oxford, UK: Oxford University Press, 2011, pp.611-619.
• Hughes JC. Promoting palliative care in dementia. Lancet Neurology 2010, 9(1), 25-27.
• Redley M, Hughes JC, Holland A. Voting and mental capacity. British Medical Journal 2010, 341, c4085.
• Hughes JC, Baldwin C. Ethics and old age psychiatry. In: Jacoby R; Oppenheimer C; Denning T; Thomas A, ed. Oxford Textbook of Old Age Psychiatry. Oxford: Oxford University Press, 2008, pp.709-729.
• Hughes JC. Ethical issues and health care for older people. In: Ashcroft, RE; Dawson, A; Draper, H; McMillan, JR, ed. Principles of Health Care Ethics. Chichester: John Wiley & Sons, 2007, pp.469-474.
• Hughes JC, Jolley D, Jordan A, Sampson EL. Palliative care in dementia: Issues and evidence. Advances in Psychiatric Treatment 2007, 13(4), 251-260.
• Hughes JC. Views of the person with dementia. Journal of Medical Ethics 2001, 27(2), 86-91.
• Hughes JC, Bamford CH, May CR. Types of centredness in health care: themes and concepts. Medicine, Health Care and Philosophy 2008, 11(4), 455-463.
• Hughes JC. Assessment of competency and advance directives. In: Stoppe G, ed. Competence Assessment in Dementia. Vienna: Springer, 2008, pp.77-84.
• Hughes JC. Being minded in dementia: persons and human beings. In: Downs M; Bowers B, ed. Excellence in Dementia Care: Research into Practice. Maidenhead, Berks: McGraw Hill, Open University Press, 2008, pp.119-132.
• Hughes JC, Newby J, Louw SJ, Campbell G, Hutton JL. Ethical issues and tagging in dementia: a survey. Journal of Ethics in Mental Health 2008, 3(1), 1-6.
• Hughes JC. Giving birth to concepts of care in dementia. In: Creative Partnerships: Improving Quality of Life at the End of Life for People with Dementia: A Compendium. London: National Council for Palliative Care, 2008, pp.39-41.
• Hughes JC. Searching for settled practice. Elderly Client Adviser 2008, 14(1), 26-29.
• Jolley D, Hughes J, Greaves I, Jordan A, Sampson E. Seeing patients with dementia through to the end of life. Geriatric Medicine 2008, 461-464.
• Hughes JC, Sabat SR. The advance directive conjuring trick and the person with dementia. In: Widdershoven GAM; McMillan J; Hope T; van der Scheer L, ed. Empirical Ethics in Psychiatry. Oxford: Oxford University Press, 2008, pp.123-140.
• Moreira T, Hughes JC, Kirkwood TBL, May CR, McKeith IG, Bond J. What explains variations in the clinical use of mild cognitive impairment (MCI) as a diagnostic category?. International Psychogeriatrics 2008, 20(4), 697-709.
• Robinson L, Hutchings D, Corner L, Finch T, Hughes J, Brittain K, Bond J. Balancing rights and risks: Conflicting perspectives in the management of wandering in dementia. Health, Risk and Society 2007, 9(4), 389-406.
• Hughes, JC, Louw, SJ. Determining capacity: curiouser and curiouser. PS: Magazine of the Law Society's Probate Section 2007, (64), 12-15.
• Robinson L, Hutchings D, Dickinson HO, Corner L, Beyer F, Finch T, Hughes J, Vanoli A, Ballard C, Bond J. Effectiveness and acceptability of non-pharmacological interventions to reduce wandering in dementia: A systematic review. International Journal of Geriatric Psychiatry 2007, 22(1), 9-22.
• Robinson L, Hutchings D, Corner L, Beyer F, Dickinson H, Vanoli A, Finch T, Hughes J, Ballard C, May C, Bond J. A systematic literature review of the effectiveness of non-pharmacological interventions to prevent wandering in dementia and evaluation of the ethical implications and acceptability of their use. Health Technology Assessment 2006, 10(26), 1-124.
• Eccles MP, Foy R, Bamford, Hughes JC, Johnston M, Whitty PM, Steen N, Grimshaw. A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia: Study protocol. Implementation Science 2006, 1(7).
• Hughes JC. Beyond hypercognitivism: a philosophical basis for good quality palliative care in dementia. Les Cahiers de la Fondation Médéric Alzheimer 2006, 2, 17-23.
• Hughes JC. Ethical issues in psychiatry. The Foundation Years 2006, 2(6), 237-239.
• Hughes JC. Patterns of practice: a useful notion in medical ethics?. Journal of Ethics in Mental Health 2006, 1(1), 1-5.
• Hughes JC, Louw SJ, Sabat SR. Seeing whole. In: Hughes, J.C., Louw, S.J., Sabat, S.R, ed. Dementia: Mind, Meaning, and the Person. Oxford: Oxford University Press, 2006, pp.1-39.
• Hughes JC. The heat of mild cognitive impairment. Philosophy, Psychiatry, & Psychology 2006, 13, 1-2.
• Aquilina C, Hughes JC. The return of the living dead: agency lost and found?. In: Hughes, J.C., Louw, S.J., Sabat, S.R, ed. Dementia: Mind, Meaning, and the Person. Oxford: Oxford University Press, 2006, pp.143-161.
• Hughes JC, Louw SJ. End of life decisions. In: Burns, A., O’Brien, J., Ames, D, ed. Dementia. London: Arnold Health Sciences, 2005, pp.239-243.
• Robinson L, Hughes J, Daley S, Keady J, Ballard C, Volicer L. End-of-life care and dementia. Reviews in Clinical Gerontology 2005, 15(2), 135-148.
• Louw SJ, Hughes JC. Ethical issues. In: Burns, A., O’Brien, J., Ames, D, ed. Dementia. London: Arnold Health Sciences, 2005, pp.230-234.
• Hughes JC, Fulford KWM. Hurly-burly of psychiatric ethics. Australian & New Zealand Journal of Psychiatry 2005, 39(11-12), 1001-1007.
• Louw SJ, Hughes JC. Moral reasoning - The unrealized place of casuistry in medical ethics. International Psychogeriatrics 2005, 17(2), 149-154.
• Hughes JC, Robinson L, Volicer L. Specialist palliative care in dementia. British Medical Journal 2005, 330(7482), 57-58.
• Baldwin C, Hope T, Hughes J, Jacoby R, Ziebland S. Ethics and dementia: the experience of family carers. Progress in Neurology and Psychiatry 2004, 8(5), 24-28.
• Hughes JC. Psychiatric ethics. Medicine 2004, 32(7), 1-3.
• Hughes JC. Ethics research in dementia: the way forward?. In: Welsh, M, ed. Focus on Alzheimer’s Disease Research. New York, USA: Nova Biomedical Books, 2003, pp.241-261.
• Hughes JC. Quality of life in dementia: an ethical and philosophical perspective. Expert Review of Pharmacoeconomics and Outcomes Research 2003, 3(5), 525-534.
• Hughes JC. Ethics and the psychiatry of old age. In: Jacoby, R., Oppenheimer, C, ed. Psychiatry in the Elderly. Oxford: Oxford University Press, 2002, pp.863-895.
• Hughes JC, Lawson T. Code of Practice 1999: navigating before reform of the Mental Health Act 1983. Advances in Psychiatric Treatment 2000, 6(1), 3-4.
• Hughes, J. C. Community Psychiatry in the RAF: an evaluative review. Psychiatric Bulletin 1997, 21, 418-421.
• Hughes, J. C., Graham, N., Patterson, K. and Hodges, J. R. Dysgraphia in mild dementia of Alzheimer’s type. Neuropsychologia 1997, 35, 533-545.
• Hughes, J. C. and Cook, C. C. H. The efficacy of disulfiram: a review of outcome studies. Addiction 1997, 92, 381-395.
• Neal, L.A., Hill, N., Hughes, J., Middleton, A. and Busuttil, W. Convergent validity of measures of PTSD in an elderly population of former prisoners of war. International Journal of Geriatric Psychiatry 1995, 10, 617-622.
• Hughes, J. C. Ultimate justification: Wittgenstein and medical ethics. Journal of Medical Ethics 1995, 21, 25-30.
• Hughes. J. C., Enderby, P.M. and Langton Hewer, R. Dysphagia and Multiple Sclerosis: a study and discussion of its nature and impact. Clinical Rehabilitation 1994, 8, 18-26.
• Smith, P.J.B. and Hughes, J. C. Stabbing, haematuria, dysfunctional platelets and meningism: delayed recognition of classical Munchausen’s. British Journal of Urology 1993, 71, 354-355.
• Hughes, J. C. Wittgenstein’s Dysphoria. Integrative Psychiatry 1993, 9, 86-91.
• Emmett C, Poole M, Bond J, Hughes JC. Homeward bound or bound for a home? Assessing the capacity of dementia patients to make decisions about hospital discharge: comparing practice with legal standards. International Journal of Law and Psychiatry 2013, 36(1), 73-82.
• Robinson L, Dickinson C, Rousseau N, Beyer F, Clark A, Hughes J, Howel D, Exley C. A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia. Age and Ageing 2012, 41(2), 263-269.
• Hughes JC. Ageing, autonomy and resources. Journal of Medical Ethics 2001, 27(1), 69-69.