- Project Dates: From October 2013 to September 2018
- Project Leader: Professor Louise Robinson
- Staff: Dr Anne Corbett, Kings College London, Dr Richard Curless, Northumbria Healthcare NHS Foundation Trust, Professor Claire Goodman, University of Hertfordshire,Mrs Karen Harrison-Dening, Dementia UK, Professor Alastair Macdonald, Glasgow School of Art, Dr Helen Mason, Glasgow Caledonian University, Dr Christopher Massey, Northumberland, Tyne & Wear NHS Foundation Trust, Dr Elizabeth Sampson, University College London,Ms Susan Tucker (Patient and Public Involvement).
- Sponsors: National Institute of Health Research
- Partners: University College London; University of Hertfordshire; Glasgow Caledonian; Glasgow School of Art; Northumbria Hospitals Trust
People with dementia already receive poorer end of life care compared to those with cancer, with more hospital admissions and worse pain control. This project aims to support professionals to deliver good quality, community-based end of life care in dementia. Firstly we will review current guidance and existing care pathways. We will also work with people with dementia, carers and professionals to examine how professionals deliver end of life care to people with dementia and their families, looking for examples of best practice and solutions to meet dementia-specific problems. Combining the above data, we will develop an intervention based on Individual Care Planning (ICP) and then see how the ICP fits into practice, if it is used by staff and whether it improves the quality of care provided. Finally we will create guidance for clinical commissioners on the provision of good quality end of life care in dementia.
Weblink to the INVOLVE website where the project is listed as good practice of PPI: