Professor Helen McConachie
- Email: firstname.lastname@example.org
- Telephone: +44 (0) 191 282 1396
- Fax: +44 (0) 191 282 4725
- Address: Institute of Health and Society
Level 3, Sir James Spence Institute
Royal Victoria Infirmary
Queen Victoria Road
Newcastle upon Tyne
NE1 4LP, UK
My research to date has focussed mainly on children with disabilities and their families. In several projects we have evaluated approaches to intervention for children, and reviewed or developed appropriate outcome measures. I am also concerned to understand what underpins behaviours: for example, how parent-child interaction can facilitate development of communication skills; and how neuropsychological processes link to repetitive behaviours and anxiety in ASD. (See Autism research website www.ncl.ac.uk/cargo-ne/). More recently I am co-leading projects which involve adults on the autism spectrum, including adaptation of a quality of life outcome measure.
I have a long-standing research and training link with a network of child development centres in Bangladesh.
I direct Daslne: the database of children with ASD living in the North East of England (www.ncl.ac.uk/daslne) and co-lead ASD-UK, a national family research database (http://asd-uk.com/).
Current and Recent
Measuring quality of life in adults on the autism spectrum: making a questionnaire fit for purpose. Research Autism, April 2016-March 2017. £50,130 Adaptation and validation of quality of life measure. Role: PI.
The Paediatric Autism Communication Trial - Generalised (PACT-G). EME, February 2016- August 2019 £1,949,200 Multi-site randomised control trial of social-communication intervention for children with autism. Role: Co-I.
A feasibility study of using an immersive virtual reality environment to reduce anxiety in children with autism spectrum disorder. NIHR Research for Patient Benefit, Feb 2015 – Nov 2016. £191,581. Feasibility and pilot RCT of treatment for anxiety in ASD. Role: Co-I.
Randomised controlled trial of improvisational music therapy for children with autism spectrum disorders: UK arm of the TIME-A study. 2014-2016. NIHR Health Technology Assessment £617,573. UK arm of international trial of music therapy. Role: Co-I.
Learning about the lives of adults on the autism spectrum and their relatives. Autistica. March 2014- Feb 2017. £199,976 Establishment of a cohort of autistic adults for longitudinal study. Role: Co-I.
DIADS - Diagnostic Instruments for Autism in Deafness Study. MRC June 2013- Dec 2016 £472,678 To develop and validate assessment tools for individuals with hearing impairment. Role: Co-I.
How can health services contribute most effectively to facilitating successful transition of young people with complex health needs from childhood to adulthood? NIHR Programme Grant, Jan 2012- Dec 2016 £1, 999, 697 To monitor transition of young people, including ASD, to adult services. Role: Co-I.
Establishing an ASD Research Register through UK paediatricians. Autistica 2010-Sept 2017 £370,334 To set up a national ASD Family Research database. Role: Co-PI.
Establishing a registry of children with autistic spectrum disorder in Northeast England. Northern Rock Foundation, 2002-17; six local authorities; Autistica; The Children’s Foundation. Database for representative recruitment of children to research studies. Role: PI.
MeASURe: Measurement in autism spectrum disorder under review. NIHR HTA, June 2012 – February 2014. £271,946. To review systematically outcome measures suitable for young children with ASD. Role: PI.
Pre-school autism intervention and autism development: a longitudinal follow up of the Preschool Autism Communication Trial (PACT) MRC Feb 2013 - Sep 2014. £680,000 To test hypotheses about development over time in a well-described cohort of children. Role: Co-I.
- Glod M, Cresswell C, Waite P, Jamieson R, McConachie HR, Don South M, Rodgers J. Comparisons of the Factor Structure and Measurement Invariance of the Spence Children's Anxiety Scale - Parent Version in Children with Autism Spectrum Disorder and Typically Developing Anxious Children. Journal of Autism and Developmental Disorders 2017, epub ahead of print.
- Fletcher-Watson S, Pain H, Hammond S, Humphry A, McConachie H. Designing for young children with autism spectrum disorder: A case study of an iPad app. International Journal of Child-Computer Interaction 2017, 7, 1–14.
- McConachie H, Livingstone N, Morris C, Beresford B, Le Couteur A, Gringras P, Garland D, Jones G, Macdonald G, Williams K, Parr JR. Parents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders 2017, Epub ahead of print.
- Magiati I, Lerh JW, Uljarevic M, Rodgers J, McConachie H, Ozsivadjian A, South M, Van Hecke A, Hardan A, Libove R, Leekam S, Simonoff E. The measurement properties of the Spence Children’s Anxiety Scale- Parent version in a large international pooled sample of young people with Autism Spectrum Disorder. Autism Research 2017, Epub ahead of print.
- Fletcher-Watson S, Petrou A, Scott-Barrett J, Dicks P, Graham C, O'Hare A, Pain H, McConachie H. A trial of an iPad™ intervention targeting social communication skills in children with autism. Autism 2016, 20(7), 771-782.
- Salomone E, Charman T, McConachie H, Warreyn P. Child's verbal ability and gender are associated with age at diagnosis in a sample of young children with ASD in Europe. Child: Care, Health and Development 2016, 42(1), 141-145.
- Rodgers J, Wigham S, McConachie H, Freeston M, Honey E, Parr JR. Development of the Anxiety Scale for Children with Autism Spectrum Disorder (ASC-ASD). Autism Research 2016, 9(11), 1205–1215.
- Brett D, Warnell F, McConachie H, Parr JR. Factors Affecting Age at ASD Diagnosis in UK: No Evidence that Diagnosis Age has Decreased Between 2004 and 2014. Journal of Autism and Developmental Disorders 2016, 46(6), 1974-1984.
- Rankin J, Glinianaia SV, Jardine J, McConachie H, Borrill H, Embleton ND. Measuring self-reported quality of life in 8- to 11- year old children born with gastroschisis: is the KIDSCREEN questionnaire acceptable?. Birth Defect Research Part A: Clinical and Molecular Teratology 2016, 106(4), 250-256.
- Pickles A, LeCouteur AS, Leadbitter K, Salomone E, Cole-Fletcher R, Tobin H, Gammer I, Lowry J, Vamvakas G, Byford S, Aldred C, Slonims V, McConachie H, Howlin P, Parr JR, Charman T, Green J. Parent-mediated social communication therapy for young children with autism (PACT): long-term follow-up of a randomised controlled trial. The Lancet 2016, 388(10059), 2501-2509.
- Nordahl-Hansen A, Fletcher-Watson S, McConachie H, Kaale A. Relations between specific and global outcome measures in a social-communication intervention for children with autism spectrum disorder. Research in Autism Spectrum Disorders 2016, 29-30, 19-29.
- Salomone E, Beranova S, Bonnet-Brilhault F, Lauritsen MB, Budisteanu M, Buitelaar J, Canal-Bedia R, Felhosi G, Fletcher-Watson S, Freitag C, Fuentes J, Gallagher L, Primo PG, Gliga F, Gomot M, Green J, Heimann M, Jonsdottir SL, Kaale A, Kawa R, Kylliainen A, Lemcke S, Markovska-Simoska S, Marschik PB, McConachie H, Moilanen I, Muratori F, Narzisi A, Noterdaeme M, Oliveira G, Oosterling I, Pijl M, Pop-Jordanova N, Poustka L, Roeyers H, Roge B, Sinzig J, Vicente A, Warreyn P, Charman T. Use of early intervention for young children with autism spectrum disorder across Europe. Autism 2016, 20(2), 233-249.
- Muslima H, Khan NZ, Shilpi AB, Begum D, Parveen M, McConachie H, Darmstadt GL. Validation of a rapid neurodevelopmental assessment tool for 10- to 16-year-old young adolescents in Bangladesh. Child: Care, Health and Development 2016, Epub ahead of print.
- Fletcher-Watson S, Petrou AM, Dicks P, Graham C, OHare A, Pain H, McConachie H. A trial of an iPad™ intervention targeting social communication skills in children with autism. Autism: International Journal of Research and Practice 2015, epub ahead of print.
- McConachie H, Fletcher-Watson S, COST Action 'Enhancing Sci Study. Building capacity for rigorous controlled trials in autism: the importance of measuring treatment adherence. Child: Care, Health and Development 2015, 41(2), 169-177.
- Merrick H, McConachie H, LeCouteur A, Mann K, Parr JR, Pearce MS, Colver A. Characteristics of young people with long term conditions close to transfer to adult health services. BMC Health Services Research 2015, 15, 435.
- Byford S, Cary M, Barrett B, Aldred CA, Charman T, Howlin P, Hudry K, Leadbitter K, Le Couteur A, McConachie H, Pickles A, Slonims V, Temple KJ, Green J, and the PACT Consortium. Cost-effectiveness analysis of a communication-focused therapy for pre-school children with autism: results from a randomised controlled trial. BMC Psychiatry 2015, 15, 316.
- Warnell F, George B, McConachie H, Johnson M, Hardy R, Parr JR. Designing and recruiting to UK autism spectrum disorder research databases: do they include representative children with valid ASD diagnoses?. BMJ Open 2015, 5(9), e008625.
- Wood CL, Warnell F, Johnson M, Hames A, Pearce MS, McConachie H, Parr JR. Evidence for ASD Recurrence Rates and Reproductive Stoppage From Large UK ASD Research Family Databases. Autism Research 2015, 8(1), 73-81.
- Grahame V, Brett D, Dixon L, McConachie H, Lowry J, Rodgers J, Steen N, Le Couteur AS. Managing Repetitive Behaviours in Young Children with Autism Spectrum Disorder (ASD): Pilot Randomised Controlled Trial of a New Parent Group Intervention. Journal of Autism and Developmental Disorders 2015, 45(10), 3168-3182.
- Parr J, Gray L, Wigham S, McConachie H, LeCouteur A. Measuring the relationship between the parental Broader Autism Phenotype, parent–child interaction, and children’s progress following parent mediated intervention. Research in Autism Spectrum Disorders 2015, 20, 24-30.
- Harrop C, LeCouteur A, Howlin P, Slonims V, Green J, Pickles A, McConachie H, Aldred C, Barrett B, Byford S, Charman T, Hudry K. Play complexity and toy engagement in preschoolers with autism spectrum disorder: Do girls and boys differ?. Autism 2015, (ePub ahead of Print).
- Salomone E, Charman T, McConachie H, Warreyn P. Prevalence and correlates of use of complementary and alternative medicine in children with autism spectrum disorder in Europe. European Journal of Pediatrics 2015, 174(10), 1277-1285.
- Hanratty J, Livingston N, Robalino S, Terwee CB, Glod M, Oono IP, Rodgers J, MacDonald G, McConachie H. Systematic review of the measurement properties of tools used to measure behaviour problems in young children with autism. PLoS ONE 2015, 10(12), e0144649.
- Fletcher-Watson S, McConachie H. The Search for an Early Intervention Outcome Measurement Tool in Autism. Focus on Autism and Other Developmental Disabilities 2015, epub ahead of print.
- Pickles A, Harris V, Green J, Aldred C, McConachie H, Slonims V, LeCouteur A, Hudry K, Charman T. Treatment Mechanism in the MRC Pre-School Autism Communications Trial Implications for study design and parent-focussed therapy for children. Journal of Child Psychology and Psychiatry 2015, 56(2), 162-170.
- Gray L, Gibbs J, Jolleff N, Williams J, McConachie H, Parr JR. Variable implementation of good practice recommendations for the assessment and management of UK children with neurodisability. Child: Care, Health and Development 2015, 41(6), 938-946.
- Byford S, Cary M, Barrett B, Aldred CA, Charman T, Howlin P, Hudry K, Leadbitter K, LeCouteur A, McConachie H, Pickles A, Slonims V, Temple KJ, Green J. Cost-effectiveness analysis of a communication-focussed therapy for pre-school children with autism. BMS Psychiatry 2014.
- South M, Chamberlain PD, Wigham S, Newton T, Le Couteur A, McConachie H, Gray L, Freeston M, Parr J, Kirwan CB, Rodgers J. Enhanced decision making and risk avoidance in high-functioning autism spectrum disorder. Neuropsychology 2014, 28(2), 222-228.
- McConachie H, McLaughlin E, Grahame V, Taylor H, Honey E, Tavernor L, Rodgers J, Freeston M, Hemm C, Steen N, Le Couteur A. Group therapy for anxiety in children with autism spectrum disorder. Autism 2014, 18(6), 723-732.
- Fletcher-Watson S, McConnell F, Manola E, McConachie H. Interventions based on the Theory of Mind cognitive model for autism spectrum disorder (ASD). Cochrane Database of Systematic Reviews 2014, (3), CD008785.
- Winburn E, Charlton J, McConachie H, McColl E, Parr J, O'Hare A, Baird G, Gringras P, Wilson DC, Adamson A, Adams S, Le Couteur A. Parents' and Child Health Professionals' Attitudes Towards Dietary Interventions for Children with Autism Spectrum Disorders. Journal of Autism and Developmental Disorders 2014, 44(4), 747-757.
- Maskey M, Lowry J, Rodgers J, McConachie H, Parr J. Reducing specific phobia/fear in young people with autism spectrum disorders (ASDs) through a virtual reality environment intervention. PLoS ONE 2014, 9(7), e100374.
- Lidstone J, Uljarevic M, Sullivan J, Rodgers J, McConachie H, Freeston M, Le Couteur A, Prior M, Leekam S. Relations among restricted and repetitive behaviours, anxiety and sensory features in children with autism spectrum disorders. Research in Autism Spectrum Disorders 2014, 8(2), 82-92.
- Harrop C, McConachie H, Emsley R, Leadbitter K, Green J. Restricted and repetitive behaviors in autism spectrum disorders and typical development: Cross-sectional and longitudinal comparisons. Journal of Autism and Developmental Disorders 2014, 44(5), 1207-1219.
- Rankin J, Jardine J, Glinianaia SV, McConachie H, Embleton ND. Self-reported quality of life in children aged less than 12 years with chronic health conditions of perinatal origin: a systematic review. In: Archives of Disease in Childhood - Fetal & Neonatal Edition. 2014, Harrogate, UK: BMJ Publishing Group.
- Jardine J, Glinianaia SV, McConachie H, Embleton ND, Rankin J. Self-Reported Quality of Life of Young Children With Conditions From Early Infancy: A Systematic Review. Pediatrics 2014, 134(4), e1129-e1148.
- Wigham S, McConachie H. Systematic review of the properties of tools used to measure outcomes in anxiety intervention studies for children with autism spectrum disorders. PLoS ONE 2014, 9(1), e85268.
- Wigham S, Rodgers J, South M, McConachie H, Freeston M. The interplay between sensory processing abnormalities, intolerance of uncertainty, anxiety and restricted and repetitive behaviours in Autism Spectrum Disorder. Journal of Autism and Developmental Disorders 2014, 45(4), 943-952.
- Khan NZ, Muslima H, El Arifeen S, McConachie H, Shilpi A, Ferdous S, Damrstadt GL. Validation of a Rapid Neurodevelopmental Assessment tool for 5 to 9 year old children in Bangladesh. Journal of Pediatrics 2014, 164(5), 1165-1170.e6.
- Maskey M, Warnell F, Parr J, LeCouteur A, McConachie H. Emotional and Behavioural Problems in Children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders 2013, 43(4), 851-859.
- Garralda ME, McConachie H, Le Couteur A, Sriranjan S, Chakrabarti I, Cirak S, Guglieri M, Bushby K, Muntoni F. Emotional impact of genetic trials in progressive paediatric disorders: a dose-ranging exon-skipping trial in Duchenne muscular dystrophy. Child: Care, Health and Development 2013, 39(3), 449-455.
- Tavernor L, Barron E, Rodgers J, McConachie H. Finding out what matters: Validity of quality of life measurement in young people with ASD. Child: Care, Health and Development 2013, 39(4), 592-601.
- Oono IP, Honey EJ, McConachie H. Parent-mediated early intervention for young children with autism spectrum disorders. Cochrane Database of Systematic Reviews 2013, 2013(4), CD009774.
- Hudry K, Aldred C, Wigham S, Green J, Leadbitter K, Temple K, Barlow K, McConachie H, the PACT Consortium. Predictors of parent-child interaction style in dyads with autism. Research in Developmental Disabilities 2013, 34(10), 3400-3410.
- Colver AF, Merrick H, Deverill M, Lecouteur A, Parr J, Pearce MS, Rapley T, Vale L, Watson R, McConachie H, on behalf of the Transition Collaborative Group. Study protocol: longitudinal study of the transition of young people with complex health needs from child to adult health services. BMC Public Health 2013, 13(1), 675.
- Parr J, Jolleff N, Gray L, Gibbs J, Williams J, McConachie H. Twenty years of research shows UK child development team provision still varies widely for children with disability. Child: Care, Health and Development 2013, 39(6), 903-907.
- Khan NZ, Muslima H, Begum A, Begum D, Akhtar S, Parveen M, Ferdous S, McConachie H, Darmstadt GL. Validation of a home-based neurodevelopmental screening tool for under 2-year-old children in Bangladesh. Child: Care, Health and Development 2013, 39(5), 643-650.
- Rodgers J, Riby DM, Janes E, Connolly B, McConachie H. Anxiety and Repetitive Behaviours in Autism Spectrum Disorders and Williams syndrome: A Cross-syndrome Comparison. Journal of Autism and Developmental Disorders 2012, 42(2), 175-180.
- Fletcher-Watson S, Leekam SR, Connolly B, Collis JM, Findlay JM, McConachie HR, Rodgers J. Attenuation of change blindness in children with Autism Spectrum Disorders. British Journal of Developmental Psychology 2012, 30(3), 446-458.
- Aldred CR, Green J, Emsley R, McConachie H. Brief report: Mediation of treatment effect in a communication intervention for pre-school children with autism. Journal of Autism and Developmental Disorders 2012, 42(3), 447-454.
- Honey E, Rodgers J, McConachie H. Measurement of restricted and repetitive behaviour in children with autism spectrum disorder: Selecting a questionnaire or interview. Research in Autism Spectrum Disorders 2012, 6(2), 757-776.
- McConachie H. Pioneers of service development for children with intellectual disability. Child: Care, Health and Development 2012, 38(6), 761-762.
- Barrett B, Byford S, Sharach J, Hudry K, Leadbitter K, Temple K, Aldred C, Slonims V, Green J, PACT Consortium, (incl. Cutress A), (incl. Leach S), (incl. Le Couteur A), (incl. McConachie H). Service and wider societal costs of very young children with autism in the UK. Journal of Autism and Developmental Disabilities 2012, 42(5), 797-804.
- Rodgers J, Glod M, Connolly B, McConachie H. The relationship between anxiety and repetitive behaviours in Autism Spectrum Disorder. Journal of Autism and Developmental Disorders 2012, 42(11), 2404-2409.
- Wigham S, McConachie H, Tandos J, Le Couteur A, Gateshead Millennium Study core team. The reliability and validity of the Social Responsiveness Scale in a UK general child population. Research in Developmental Disabilities 2012, 33(3), 944-950.
- Iao LS, Leekam S, Perner J, McConachie H. Further Evidence for Nonspecificity of Theory of Mind in Preschoolers: Training and Transferability in the Understanding of False Beliefs and False Signs. Journal of Cognition and Development 2011, 12(1), 56-79.
- Honey E, McConachie H, Turner M, Rodgers J. Validation of the Repetitive Behaviour Questionnaire for use with Children with Autism Spectrum Disorder. Research in Autism Spectrum Disorders 2011, 6(1), 355-364.
- Pinto D, Pagnamenta AT, Klei L, Anney R, Merico D, Regan R, Conroy J, Berney T, Le Couteur A, McConachie H, Parr JR. Functional impact of global rare copy number variation in autism spectrum disorders. Nature 2010, 466, 368–372.
- Kisler J, McConachie H. Parental reaction to disability. Paediatrics and Child Health 2010, 20(7), 309-314.
- Green J, Charman T, McConachie H, Aldred C, Slonims V, Howlin P, Le Couteur A, Leadbitter K, Hudry K, Byford S, Barrett B, Temple K, Macdonald W, Pickles A. Parent-mediated communication-focused treatment in children with autism (PACT): a randomised controlled trial. Lancet 2010, 375(9732), 2152-2160.
- Hudry K, Leadbitter K, Temple K, Slonims V, McConachie H, Aldred C, Howlin P, Charman T. Preschoolers with autism show greater impairment in receptive compared with expressive language abilities. International Journal of Language and Communication Disorders 2010, 45(6), 681-690.
- Arnott B, McConachie H, Meins E, Fernyhough C, LeCouteur A, Turner M, Parkinson K. The frequency of restricted and repetitive behaviours in a community sample of 15-month-old infants. Journal of Developmental and Behavioral Pediatrics 2010, 31(3), 223-229.
- McConachie H. Growing up with disability (research highlights in social work 34). Journal of Applied Research in Intellectual Disabilities 1999, 12(4), 360-361.