Dr Jeremy Parr
Clinical Senior Lecturer/Hon Consultant

  • Email: jeremy.parr@ncl.ac.uk
  • Fax: +44 (0) 191 282 4725
  • Address: Sir James Spence Institute
    Royal Victoria Infirmary
    Newcastle Upon Tyne
    NE1 4LP
    United Kingdom

Introduction

I am a Paediatric Neurodisability clinical academic with wide ranging research interests in the Neurodisability field, including investigating the neurobiological basis of disabilities, carrying out intervention studies to ameliorate disability, and undertaking research into clinical service delivery.

My clinical work is for two local NHS Trusts. 1. Newcastle Upon Tyne Hospitals NHS Foundation Trust at the Great North Children's Hospital in the Regional Neurodisability service (Regional Feeding clinic, and Neurodevelopmental Disorders Clinic) and 2.  Northumberland Tyne and Wear NHS Foundation Trust in the Regional Autism Spectrum Disorder diagnosis, management and intervention service, where I lead multidisciplinary assessments of children with ASD (the Complex Neuroevelopmental Disorders Service).

 

Qualifications 

MB ChB (1996)

MD (Broader Autism Phenotype, 2007)

CCT in Paediatric Neurodisability, and Paediatrics (2007) 

 

National committee roles

Member of the Executive Committee of the British Academy of Childhood Disability (2007-present)

Chair of the British Academy of Childhood Disability Strategic Research Group (2012-present)

Co-Chair of the Research Autism Scientific Advisory Committee (2012-present)

Member, the NIHR Medicines for Children Research Network Neurosciences Clinical Study Group (2013-present)

Member of the Castang Foundation Science Committee (2008-present)

Member of the Research Support Panel for Child Brain Research (2013-present)

Member of the British Autism Study of Infant Siblings (BASIS) Science Committee (2012-present)

Organising Committee member (lead for exhibition and sponsorship) and Scientific Committee member, The 25th European Academy of Childhood Disability (EACD) meeting, Newcastle-Gateshead, The Sage, Ocober 2013

 

Previous Positions

Nov 2006 – May 2009 Consultant and Honorary Senior Lecturer, Paediatric Neurodisability, Great Ormond Street Hospital and the Institute of Child Health, London

Sept 2008 – May 2009 Senior Academic Research Fellow and Honorary Consultant Paediatrician University of Oxford and Oxford Children’s Hospital

As Chief Investigator

I lead the Autism Spectrum Database-UK, which is a database of families of children with ASD, who have shown interest in participating in research. The database has two main aims: 1. To increase families access to research; and 2. To increase the number of families available to be recruited to researchers studies, resulting in improved research capacity. ASD-UK was funded by the UK autism charity Autistica in 2010 (£145 000). More than 1250 families have joined ASD-UK, and we are now in touch with over 1600 families. Information for families and researchers can be found at http://www.asd-uk.com/

I lead a programme of research about Autism Spectrum Conditions in adulthood and older age that will start to recruit adults and relatives to research cohorts in autumn 2014. The research programme is funded by Autistica (£200 000) and we anticipate additional projects will commence early in 2015

The ASD+ study - investigating changes in the co existing conditions of children with ASD, and their impact on the family (through Autistica Indian Fellowship, supporting Dr Beena Koshy; £88 000). Dr Koshy's study has collected data from more than 650 parents of children with autism spectrum disorder to date

Virtual reality environments in the treatment of anxiety in children with ASD. This is a collaboration with the SME Third Eye, and is funded through a Newcastle University sponsored Daphne Jackson Fellowship to Dr Morag Maskey (£42 000). The results of the study have been published and can be found here: http://www.ncl.ac.uk/ion/news/news/item/children-with-autism-overcome-real-life-fears-in-virtual-world-copy

Since 2011, I have led the International Molecular Genetic Study of Autism Consortium (IMGSAC). Data and family DNA are now housed in Newcastle. I lead IMGSACs role in the Autism Genome Project Consortium, a consortium of researchers from Europe and North America. The AGP aims to identify genetic casues of autism spectrum disorder, the relationship between genotype and ASD phenotype, and the clinical application of these findings. Together with colleagues, I have led the investigation of the Broader Autism Phenotype in relatives of people with autism from the IMGSAC families

I work with a number of collaborators nationally and internationally on ASD genetic studies (including on the UK10K project)

I am Chief Investigator for a 15 site multicentre trial of the effectiveness of Glycopyrronium vs Hyoscine to treat drooling in children with neurodisability. Funding is from Wellchild (£57 000), the Castang Foundation (£60 000), The Children's Foundation (£21 000), and the British Academy of Childhood Disability (£25 000). We are almost halfway through recruitment, and the trial will end in March 2015

 

Together with Co PI Dr Peter Sullivan, I lead the Oxford Dolphin research studies. Follow up of the 100 children in the trial will end in December 2014. The follow up study of children in early childhood will start in early 2015

  • The effect of optimising nutrition on growth and neurodisability in children at risk of cerebral palsy  (£250 000 from the Castang Foundation)
  • The effect of optimising nutrition on growth and neurodisability in young children with confirmed cerebral palsy (£183 000 from SPARKS)

 

As Co Investigator 

I am part of a Newcastle led, multisite Research Programme regarding 'Transition'. This is a £2 million NIHR Programme grant for Applied Research, and is led by Professor Allan Colver (2012-2017). The Programme aims to answer the question: How can health services contribute most effectively to facilitating successful transition of young people with complex health needs from childhood to adulthood?

I am a member of the MeASURe group who have just completed a systematic review of measurement tools used to measure progress and outcome in young children in ASD (MeASURe: Measurement in Autism Spectrum Disorder Under Review). NIHR HTA, £271 000  (Chief Investigator Professor Helen McConachie, Newcastle University)

I am part of the Preschool Autism Communication Trial 7-11 follow up study (PACT 7-11) of children recruited to the MRC funded PACT study. This MRC funded  follow up study ends in early 2015 (£740 000, Chief Investigator Professor Jonathan Green, University of Manchester)

Dr Jacqui Rodgers leads a project to create a standardised measure of anxiety in children with ASD. Measuring anxiety in Autism Spectrum Disorder (£47 000, Baily Thomas Foundation)