The School of Geography, Politics and Sociology

Staff Profile

Libby Wood

GCRF Living Deltas Hub Project Manager


I am the Project Manager for the UKRI GCRF Living Deltas Hub -  I am responsible for the co-ordination and governance of the Hub ensuring the successful delivery of all six work packages and supporting its strategic and operational development . This includes oversight of the £17.3 million budget and it's distrbution across 13 countires and 39 partner organisations.  I am the first point of contact for the Executive Group, Advisory Board and the funder, UKRI. 

This interdisciplinary Research Hub is working in three delta regions (Mekong, Red River and Ganges-Brahmaputra-Meghna) to safeguard delta futures through more resilient communities and sustainable development and operates on a model of equitable partnership with the delta-dwellers and the research community to develop new knowledge and policies.

Previous Roles:

 Creative Fuse North East Project Manager

I managed this multi partner and multi funded (European Regional Development Fund (ERDF), Arts Council England (ACE) and Arts and Humanities Research Council (AHRC)) through a transitional period as it looked to seek additional funding and ensure lasting legacy in the region. This project aimed to bring together stakeholders from academia and the creative industries to boost collaboration and drive innovation in the North East of England. 

RD-Connect Project Manager

As the Project Manager for the EC FP7 funded RD-Connect project I was responsible for leading the strategic development and delivery of the project to ensure the deliverable and objectives are achieved and securing the sustainability of the tools and resources developed beyond this funding period. RD-Connect is an integrated omics platform for data sharing in rare disease.

Previous interests have been in patient registries for rare disease and the coordination and management of clinical research. I have an overall interest in trial readiness and work closely with networks such as TREAT-NMD to promote the role of patient registries in facilitating and accelerating translational research and promote best practice in this area.


Eight years after an International Workshop on Myotonic Dystrophy Patient Registries: case study of a global collaboration for a rare disease. Libby Wood; Guillaume Bassez; Corinne Bleyenheuft; Craig Campbell; Louise Cossette; Aura Cecilia Jimenez Moreno; Yi Da; Hugh Dawkins; Jorge Alberto Diaz Manera; Celine Dogan; Rasha el Sherif; Barbara Fossati; Caroline Graham; James Hilbert; Kristina Kastreva; En Kimura; Lawrence Korngut; Anna Kostera-Pruszczyk; Cristopher Lindberg; Björn Lindvall; Elizabeth Luebbe; Anna Lusakowska; Radim Mazanec; Giovani Meola; Lianna Orlando; Masanori P. Takahashi; Stojan Peric; Jack Puymirat; Vidosava Rakocevic-Stojanovic; Miriam Rodrigues; Richard hugh Roxhburgh; Benedikt Schoser; Sonia Segovia; Andriy Shatillo; Simone Thiele; Ivalio Tournev; Baziel van Engelen; Stanislav Vohanka; Hanns Lochmüller Manuscript in preparation.

Cognitive behavioural therapy with optional graded exercise therapy in patients with severe fatigue with myotonic dystrophy type 1: a multicentre, single-blind, randomised trial. Okkersen K, Jimenez-Moreno C, Wenninger S, Daidj F, Glennon J, Cumming S, Littleford R, Monckton DG, Lochmüller H, Catt M, Faber CG, Hapca A, Donnan PT, Gorman G, Bassez G, Schoser B, Knoop H, Treweek S, van Engelen BGM; OPTIMISTIC consortium. Lancet Neurol. 2018 Jun 18. [Epub ahead of print]

222nd ENMC International Workshop:: Myotonic dystrophy, developing a European consortium for care and therapy, Naarden, The Netherlands, 1-2 July 2016. Wood L, Bassez G, van Engelen B, Lochmüller H, Schoser B; 222nd ENMC workshop participants. Neuromuscul Disord. 2018 May;28(5):463-469.

RD-Connect, NeurOmics and EURenOmics: collaborative European initiative for rare diseases. Lochmüller H, Badowska DM, Thompson R, Knoers NV, Aartsma-Rus A, Gut I, Wood L, Harmuth T, Durudas A, Graessner H, Schaefer F, Riess O; RD-Connect consortium; NeurOmics consortium; EURenOmics consortium. Eur J Hum Genet. 2018 Jun;26(6):778-785.

Linked Registries: Connecting Rare Diseases Patient Registries through a Semantic Web Layer. Sernadela P, González-Castro L, Carta C, van der Horst E, Lopes P, Kaliyaperumal R, Thompson M, Thompson R, Queralt-Rosinach N, Lopez E, Wood L, Robertson A, Lamanna C, Gilling M, Orth M, Merino-Martinez R, Posada M, Taruscio D, Lochmüller H, Robinson P, Roos M, Oliveira JL. Biomed Res Int. 2017;2017:8327980.

Chronic pain has a strong impact on quality of life in facioscapulohumeral muscular dystrophy. Morís G, Wood L, FernáNdez-Torrón R, González Coraspe JA, Turner C, Hilton-Jones D, Norwood F, Willis T, Parton M, Rogers M, Hammans S, Roberts M, Househam E, Williams M, Lochmüller H, Evangelista T. Muscle Nerve. 2018 Mar;57(3):380-387.

Benign and malignant tumors in the UK myotonic dystrophy patient registry. Alsaggaf R, Wang Y, Marini-Bettolo C, Wood L, Nikolenko N, Lochmüller H, Greene MH, Gadalla SM. Muscle Nerve. 2018 Feb;57(2):316-320.

Respiratory involvement in ambulant and non-ambulant patients with facioscapulohumeral muscular dystrophy. Moreira S, Wood L, Smith D, Marini-Bettolo C, Guglieri M, McMacken G, Bailey G, Mayhew A, Muni-Lofra R, Eglon G, Williams M, Straub V, Lochmüller H, Evangelista T. J Neurol. 2017 Jun;264(6):1271-1280.

The UK Myotonic Dystrophy Patient Registry: facilitating and accelerating clinical research. Wood L, Cordts I, Atalaia A, Marini-Bettolo C, Maddison P, Phillips M, Roberts M, Rogers M, Hammans S, Straub V, Petty R, Orrell R, Monckton DG, Nikolenko N, Jimenez-Moreno AC, Thompson R, Hilton-Jones D, Turner C, Lochmüller H. J Neurol. 2017 May;264(5):979-988. doi: 10.1007/s00415-017-8483-2.

Design, set-up and utility of the UK facioscapulohumeral muscular dystrophy patient registry. Evangelista T, Wood L, Fernandez-Torron R, Williams M, Smith D, Lunt P, Hudson J, Norwood F, Orrell R, Willis T, Hilton-Jones D, Rafferty K, Guglieri M, Lochmüller H. J Neurol. 2016 Jul;263(7):1401-8.

Cognitive behaviour therapy plus aerobic exercise training to increase activity in patients with myotonic dystrophy type 1 (DM1) compared to usual care (OPTIMISTIC): study protocol for randomised controlled trial. van Engelen B; OPTIMISTIC Consortium. Trials. 2015 May 23;16:224