Senior Research Associate and Deputy Director, NIHR, RDS NE
- Email: email@example.com
- Telephone: +44 (0) 191 208 562 9
- Address: Institute of Health & Society
Newcastle upon Tyne
I am an active researcher with an established, substantial track record in health and social care research in the North East and nationally. During my time at Newcastle University I have worked on 14 research studies and gained considerable experience in both qualitative and quantitative research methods and project management.
I have conducted a broad range of health services research including randomised controlled trials, postal and interview surveys, qualitative studies and mixed methods studies, with a variety of patient groups, from older people with stroke and hip fracture, to young wheelchair users. Much of this work has required a high degree of sensitivity, for example when I have interviewed bereaved informal carers, people newly diagnosed with cancer, people with dementia and older people who have recently suffered from a stroke.
My skills and experience extend from in-depth and cognitive interviewing, focus groups,and thematic methods of analysis to questionnaire and interview schedule design, the conduct of surveys (postal and interview) and statistical analysis.
Roles and responsibilities
I currently work for the NIHR Research Design Service North East. Including my role as Deputy Director my other roles within the Research Design Service are:
Research methodologist - first contact for health professionals and academic staff wishing to apply for NIHR or peer reviewed funding for health and social care research. I advise on study design and methods, identify appropriate funding and other support such as support for statistics, health economics, qualitative research, literature searches and trials (from Newcastle Clinical Trials Unit).
Qualitative adviser - in this role I offer advice on the potential for, and value of, qualitative research in relation to the client's proposed project and how it may complement other approaches. I also provide advice and support on research design and other issues such as suitable training, ethical issues and the resources required in order to conduct qualitative research.
For more information about RDS NE see http://www.rds-ne.nihr.ac.uk/
1994-1997 - MSc Social Research
1987-1991 - BSc (Hons.) Upper 2nd Class Sociology & Social Research
Clinical Scientist, Department of Psychiatry, Royal Victoria Infirmary (1992–1993)
I have a longstanding interest in patient information specifically in relation to what people understand, retain and how they make sense of the information they receivein a clinical or research setting. This stems from research I conducted evaluating the benefits of a patient held record for patients newly diagnosed with colorectal and lung cancer. This work highlighted the problems for these vulnerable patients - who were often under the care of several specialists - in retaining and understanding information about their treatment and care and solutions to these problems.
This interest was renewed, but from a different perspective, in my work examining the processes and practices in the enrolment of patients to randomised controlled trials (RCTs) of hyper-acute stroke treatments, funded by The Stroke Association. My remit was to investigate the decision making processes of patients and their families through in-depth interviews. In conjunction with this I have conducted two literature reviews around the issue of obtaining informed consent to research, both in an acute situation and with patients who may have impaired decision-making capacity. One relates to public views on research without consent and the other to obtaining consent in the acute situation. The conduct of these reviews has highlighted to me the considerable amount of research evidence suggesting that patient participants often do not understand what they have consented to and the lack of consultation about what patients feel they need to know in order to make an informed decision. My interest in information provision in the context of informed consent has developed from this work.
SURAB - feasibility study includes exploratory phase of patient and public involvement to develop trial information and clinician survey to determine equipoise. Responsibilities: PPI, clinician survey and qualitative process evaluation of feasibility phase. http://www.nets.nihr.ac.uk/__data/assets/pdf_file/0018/115560/PRO-11-107-01.pdf
NotePad - Responsibilities: Co-lead on Implementation Phase (WP3B) - mixed methods.
TOPPITS - Responsibilities: PPI Lead. http://www.nets.nihr.ac.uk/__data/assets/pdf_file/0009/98766/PRO-12-01-04.pdf
ALTAR - ALternatives To prophylactic Antibiotics for the treatment of Recurrent urinary tract infection in women. Responsibilities: lead for the qualitative process evaluation.
DARE - Decision making in aortic aneurism: Responsibilities: overseeing qualitative data collection and analysis.
Understanding Frames. Responsibiilties: overseeing qualitative data collection and analysis.
ALternatives To prophylactic Antibiotics for the treatment of Recurrent urinary tract infections in women (ALTAR study). HTA Commissioned call. Start: 2016. End: 2020
Standing frames as part of postural management for children with spasticity. What is the acceptability of a trial to determine the efficacy of standing frames? HTA commissioned call. Start: 2015 End: 2018
Trial of Proton Pump Inhibitors in throat Symptoms (TOPPITS). HTA Clinical Evaluation and Trials. Start: 2014. End:2018
Innovative photoplethysmography technonglogy for rapid non-invasive assessment of peripheral arterial disease in primary care (NotePad) - i4i Challenge Award 2014-2016
Willingness of clinicians and patients to randomise into a study comparing radio frequency ablation (RFA) with active surveillance, in the management of incidentally diagnosed small renal tumours: a feasibility study (SURAB) - HTA Commissioned call. Start: 2014 End: 2017
Are medication compliance aids helpful to users?: a qualitative study. Jan Lecouturier (Principal Investigator), Richard Copeland, Bill Cunningham and David Campbell. Royal College of General Practitioners Scientific Foundation Board, 2005-2006
Submitted funding applications as co-applicant
Multicentre, open label, prospective, single arm study of the safety and impact of Eculizumab withdrawal in patients with atypical haemolytic uraemic syndrome. HTA Clinical Evaluation and Trials programme. CI Neil Sheerin
- Lecouturier J, Cunningham B, Campbell D, Copeland R. Medication compliance aids: a qualitative study of users' views. British Journal of General Practice 2011, 61(583), 93-100.
- Lecouturier J, Rodgers H, Murtagh MJ, White M, Ford GA, Thomson RG. Systematic review of mass media interventions designed to improve public recognition of stroke symptoms, emergency response and early treatment. BMC Public Health 2010, 10(1), 784.
- Lecouturier J, Murtagh MJ, Thomson RG, Ford GA, White M, Eccles M, Rodgers H. Response to symptoms of stroke in the UK: a systematic review. BMC Health Services Research 2010, 10(1), 157.
- Lecouturier J, Stobbart L, Murtagh MJ, Ford GA, Rapley T, Louw S, Rodgers H. The challenges of seeking consent from adults to participate in acute research studies. Clinical Ethics 2010, 5(2), 73-76.
- Lecouturier J, Bamford C, Hughes JC, Francis JJ, Foy R, Johnston M, Eccles MP. Appropriate disclosure of a diagnosis of dementia: Identifying the key behaviours of 'best practice'. BMC Health Services Research 2008, 8, 95.
- Lecouturier J, Rapley T, Stobbart L, Ford G, Louw S, Rodgers H, Murtagh MJ. Clinical research without consent in adults in the emergency setting: a review of patient and public views. BMC Medical Ethics 2008, 9, 9.
- Baker R, Lecouturier J, Bond S. Explaining variation in GP referral rates for x-rays for back pain. Implementation Science 2006, 1(1), 15.
- Corbett S, Welfare M, McColl E, Lecouturier J, Devine Z. Implementing a colitis education and support programme. Gastrointestinal Nursing 2006, 4(5), 12-20.
- Lock CA, Lecouturier J, Mason JM, Dickinson HO. Lifestyle interventions to prevent osteoporotic fractures: A systematic review. Osteoporosis International 2006, 17(1), 20-28.
- Dickinson HO, Lock CA, Lecouturier J, Beyer F, Mason J. A systematic review of calcium and vitamin D for the prevention of osteoporotic fractures. London, UK: submitted to Royal College of Nurses, 2005.
- Lecouturier J, On behalf of the CESP Research Team. Does a customised self-management programme have any impact on quality of life of people with ulcerative colitis?. In: 10th Annual Conference of the International Society for Quality of Life Research (ISOQOL). 2003, Prague, Czech Republic: Quality of Life Research: Springer.
- Lecouturier J, Crack L, Mannix K, Hall RH, Bond S. Evaluation of a patient-held record for patients with cancer. European Journal of Cancer Care 2002, 11(2), 114-121.
- Bond J, Gregson B, Smith M, Lecouturier J, Rousseau N, Rodgers H. Predicting place of discharge from hospital for patients with a stroke or hip fracture on admission. Journal of Health Services Research and Policy 2000, 5(3), 133-139.
- Jacoby A, Lecouturier J, Bradshaw C, Lovel T, Eccles M. Feasibility of using postal questionnaires to examine carer satisfaction with palliative care: A methodological assessment. Palliative Medicine 1999, 13(4), 285-298.
- Lecouturier J, Jacoby A, Bradshaw C, Lovel T, Eccles M. Lay carers' satisfaction with community palliative care: Results of a postal survey. Palliative Medicine 1999, 13(4), 275-283.
- Lecouturier J, Clarke MP, Errington G, Hallowell N, Murtagh MJ, Thomson R. Treating childhood intermittent distance exotropia: a qualitative study of decision making. BMC Opthalmology 2015, 15, 112.
- Colver A, Pearse RS, Watson RM, Fay M, Rapley T, Mann KD, Le Couteur A, Parr J, Mc Conachie HM. How well do services for young people with long term conditions deliver features proposed to improve transition?. BMC Health Services Research 2018, 18, 337.
- Goodwin J, Lecouturier J, Basu A, Colver A, Crombie S, Smith J, Howel D, McColl E, Parr JR, Kolehmainen N, Roberts A, Miller K, Cadwgan J. Standing Frames as Postural Management for Children with Cerebral Palsy: A Mixed Methods Feasibility Study. Health Technology Assessment 2018. In Press.
- Goodwin J, Lecouturier J, Crombie S, Smith J, Basu A, Colver A, Kolehmainen N, Parr JR, Howel D, McColl E, Roberts A, Miller K, Cadwgan J. Understanding frames: A qualitative study of young people's experiences of using standing frames as part of postural management for cerebral palsy. Child Care, Health and Development 2018, 44(2), 203-211.
- Goodwin J, Colver A, Basu A, Crombie S, Howel D, Parr JR, McColl E, Kolehmainen N, Roberts A, Lecouturier J, Smith J, Miller K, Cadwgan J. Understanding frames: A UK survey of parents and professionals regarding the use of standing frames for children with cerebral palsy. Child: Care, Health & Development 2018, 44(2), 195-202.
- Soomro N, Lecouturier J, Stocken DD, Shen J, Hynes AM, Ainsworth HF, Breen D, Oades G, Rix D, Aitchison M. Surveillance versus ablation for incidentally diagnosed small renal tumours: The SURAB feasibility RCT. Health Technology Assessment 2017, 21(81), 1-68.
- Goodwin J, Lecouturier J, Crombie S, Smith J, Cadwgan J. Understanding Frames: Implementation of standing frames as part of postural management for children with cerebral palsy in the classroom. In: European Academy of Childhood Disability. 2017, Amsterdam, Netherlands: Developmental Medicine and Child Neurology.
- Goodwin J, Lecouturier J, Crombie S, Smith J, Cadwgan J. Understanding Frames: Young people’s experiences of using standing frames as postural management in cerebral palsy. In: European Academy of Childhood Disability. 2017, Amsterdam, Netherlands: Wiley-Blackwell Publishing Ltd.
- Goodwin J, Lecouturier J, Crombie S, Smith J, Cadwgan J. Understanding Frames: Young people’s experiences of using standing frames as postural management in cerebral palsy. In: Great North Children’s Research Community Conference. 2017, Sage, Gateshead.
- Hodgson A, Grahame V, Garland D, Gaultier F, Lecouturier J, Le Couteur A. Parents’ Opinions about an Intervention to Manage Repetitive Behaviours in Young Children with Autism Spectrum Disorder: A Qualitative Study. Journal of Applied Research in Intellectual Disabilities 2016, Epub ahead of print.
- Watson G, O'Hara J, Carding P, Lecouturier J, Stocken D, Fouweather T, Wilson JA. TOPPITS: Trial Of Proton Pump Inhibitors in Throat Symptoms. Study protocol for a randomised controlled trial. BMC Trials 2016, 17, 175.
- Goodwin J, Lecouturier J, Crombie S, Smith J, Cadwgan J. Young people’s experiences of using standing frames as postural management in cerebral palsy. In: YPAGne Young people’s voices: shaping the future of research and healthcare. 2016, Newcastle upon Tyne, UK.