Project Items
RD Connect
- Project Dates: From November 2012 to October 2018
- Project Leader: Hanns Lochmüller and Kate Bushby
- Sponsors: EU
PEALS takes part in the Ethical, Legal & Social work of this project, which aims to provide an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for international rare disease research.
PEALS is primarily involved in researching patient expectations and concerns around sharing and linking data and tissue for rare disease research and also contributes to activities in bioethics.