Pauline is a medical sociologist with a background in education, social policy and participatory methods. Her research encompasses: patient experiences of medical technologies, translational research and clinical trials; patient participation; and bioethics, with particular interests in notions of power and the patient voice @paulinemacco
She has worked empirically on several rare disease projects such as RD-CONNECT, 100,000 Genomes Project and TREAT-NMD. She is also working on 'When technology fails patients', exploring the experiences of patients with failed metal-on-metal hip replacements @metalhip_ncl
Publications: e-prints service
EdD Education, Newcastle University 'Fortress Education: a study of widening participation at an elite UK university'
MSc Computing Science, Newcastle University
BA (Hons) Classical Studies, Newcastle University
Pauline's publications are available at from Newcastle University's e-prints service.
Pauline's research interests are in medical sociology particularly, social and ethical approaches to new technologies, patient activism, and how policy translates to individuals. She often works in the field of rare diseases, investigating patient/patient advocates' experiences of new drug developments and technologies, particularly genomics.
Co-lead (with Simon Woods) Genomics England Patient Involvement implementation group 2015-
Invited expert: Nuffield Council on Bioethics ‘Neurotechnologies and registries’ workshop 2013, London, UK
Invited presenter: Nuffield Council on Bioethics ‘Children and research’ working party 2013, London, UK
Invited speaker: Evidence Live13 "Are patients just pound signs?": perspectives of people with failed metal on metal hip implants, Oxford, UK
Chairperson Rare Disease Patient and Ethics Council 2012-
Speaker: expert workshop for newborn screening in Duchenne muscular dystrophy, 2012, Naarden, Netherlands
Submission/publication of evidence to UK Science and Technology Select Committee Inquiry on Medical Device Regulation, 2012, London, UK
2016 Wellcome Trust Small Grant £5,000
2015 Faculty Small Bids & SAgE £8,000
2013 GPS Research Fund & MSE £4,000
2011 Faculty Research Fund £3,800; EPSRC Impact Fund £36,000 (PI T J Joyce)
2010 GPS Technical Training £500
2004 PI on SINE Project, £390,000 from Heritage Lottery Fund
Current teaching includes lectures on:
MRes Neuromuscular Disorders
Sociology module Investigating the Body
Bioethics for Bioengineering - Newcastle University
Lecturer on MA Educational Enquiry - Open University
Module Leader Student Tutoring Masters level - Newcastle University
I have 20 years of experience teaching in education; historical/humanities computing; learning technologies and of supervising Masters' dissertations.