Newcastle Clinical Trials Unit

Patient & Public Involvement & Engagement

Patient and Public Involvement and Engagement (PPIE)

PPIE is essential to the success of research, with continuous involvement at every stage of the research cycle from applying for funding, through to sharing and disseminating study findings.

We look to work in active partnership with a diverse group of patients, their family and carers and members of the public, who have personal experiences and an interest in health social care research. PPIE can help make sure our research stays relevant as well as being high quality.

If you are interested in what research is going on in NCTU, you can find a list of studies in the “our trials” section of this website.

For most studies, you need to meet certain criteria to be able to take part as a participant, so it’s always best to speak to your doctor about what studies are in your area and might be suitable for you or your family.

NCTU doesn’t keep a register of patients or members of the public who wish to volunteer for PPIE in research, but we would encourage you to have a look at the links below. We work closely with the Research Design Service, North East and North Cumbria, who have section on their website of helpful information and resources. 

External resources

The Research Design Service North East and North Cumbria

VOICE is a unique organisation, comprising a large network of citizens across the UK and internationally. Members contribute immense insights, experience, ideas and vision to identify unmet needs and opportunities, to drive innovation on ageing and improve health research

The James Lind Alliance (JLA) is a non-profit making initiative established in 2004. It brings patients, carers and clinicians together in Priority Setting Partnerships (PSPs) to identify and prioritise the Top 10 unanswered questions or evidence uncertainties that they agree are the most important

People in Research provides pportunities for public involvement in NHS, public health and social care research.

invoDIRECT is a directory of networks, groups and organisations that support active public involvement in NHS, public health and social care research. The resource will allow individuals or networks, groups or organisations to be aware of and make contact with others who are carrying out similar work.