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News Update: Join Us at the ECRD 2024!

 

Our Newcastle University Centre for Rare Disease is proud to be an associate partner at the European Conference on Rare Diseases & Orphan Products (ECRD) 2024. Join us for this major event on May 15-16, 2024, available online through a fully interactive platform. The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. With over 1000 participants, the Conference is an unrivalled opportunity to network and exchange invaluable insights within the rare disease community.

 

Discussions will be taking place on areas including breakthrough therapies funding, mental health support for rare disease patients, equitable diagnosis strategies, access to specialised care, and robust national action plans for rare diseases.  The conference, organised under the auspices of the Belgian Presidency, will culminate in the output of a co-created, open letter to EU Institutions and country leaders, providing a solid legacy for the future of the newly elected EU leadership.