Pauline McCormack attended the European Conference on Rare Diseases (ECRD) in Edinburgh and joined colleagues from FMS at Newcastle University and Centro Nacional de Análisis Genómico of Barcelona to deliver a tutorial, 'How could the RD-Connect platform support Rare Disease European Reference Networks?'

Pauline presented her work on deliberative engagement with rare disease patient groups as well as an outline of the project's ethical framework. ECRD is attended by over 750 rare disease patient advocates, scientists and policy makers from all over the world.