Staff Profile
Helen Walker
Patient Registry Project Manager
- Email: helen.walker2@ncl.ac.uk
- Address: John Walton Muscular Dystrophy Research Centre
Translational and Clinical Research Institute
Faculty of Medical Sciences
Newcastle University
International Centre for Life
Newcastle upon Tyne, NE1 3BZ
Background
I am the Curator and Manager of the UK FSHD and Myotonic Dystrophy Patient Registries run from the John Walton Muscular Dystrophy Research Centre. I previously worked as the Global Registries Network Manager for TREAT-NMD, and also have experience working in research administration for both Newcastle University and the NHS. I’m proud to be re-joining the wonderful JWMDRC team and working closely with the FSHD and Myotonic Dystrophy communities.