I am the Curator and Manager of the UK FSHD and Myotonic Dystrophy Patient Registries run from the John Walton Muscular Dystrophy Research Centre. I previously worked as the Global Registries Network Manager for TREAT-NMD, and also have experience working in research administration for both Newcastle University and the NHS. I’m proud to be re-joining the wonderful JWMDRC team and working closely with the FSHD and Myotonic Dystrophy communities.